Living with a Chronic Degenerative Disease

LIVING WITH CHRONIC DISEASE/DISABILITY

(Parkinson’s Disease)

I have had advanced Parkinson’s Disease (PD) for almost forty years now.  It came into my life uninvited and unannounced when I was in my twenties. It has remained an obnoxious and unwanted visitor ever since.

I have never considered myself “disabled”.  I have seen the rest of the world as having many shortfalls.

I have never seen myself as inadequate or not “up to speed”.  I have often thought of the world as being inadequate for being unable to keep up with my expectations.

When the symptoms of PD rise up and threaten to consume me, I am ever so grateful that PD has many things associated with it but pain is not one of them.  As well, I am thankful that I was born into a place and time where medical technology can ease the symptoms and that I have been placed in an affluent country and abundant life style so as to be able to partake of every opportunity.

I experience valleys and dark places but at those times am thankful for because of them, I can appreciate the mountain tops and know what a privilege it is to live and walk in Light.

I partake of and experience life much more deeply than the rest of the world.  I inhale deeply and with each breath I draw in the nectar/essence of life.

There is never a holiday.  PD is always there.

My two “aces in the hole”
1. I am not afraid of today or tomorrow because I have seen yesterday.

2. When the darkness pushes in, I let it push open the Door of Grace and  I step across the threshold to angels and the way of heaven.  I “kick off my shoes” and stay a while.

When I fall or need a wheel chair, I do not see this a problem ambulating but as being closer to being on my knees - the gateway to God, Grace and Miracles.

When you look at me what do you see?
Do you see a decrepit disintegrating shell?

Or do you see what is really here?

I am a fiery ball of god light.

I am sacred.

I am holy.

I am powerful.

I walk with angels.

I am known by The One Who is Un-nameable” and the “One Who Is Known by a Thousand Names.

I call The Great I Am  “friend”

Connie Dohan

06 Nov 2017

New Cutting Edge Parkinson's Trial being done in USA

Cutting Edge, brand new

Parkinson's trial being done in USA.

By the grace of God, putting me in the right place at the right time  I have become part of an exciting  new nation wide trial that could revolutionalise the way Parkinson's is treated in the future.

I am one of 4 subjects in Ohio and one of 8 nationwide.

It's testing a non invasive procedure replacing deep brain stimulation.  There is no incision - it is done completely out side the head using an ultra sound procedure.

The initial results have been amazing & without the risk that surgery carries.

It is for people with primarily unilateral tremor  (tremor is worse on one side.)

 I always wondered how to get in on a trial.

If you or some one you know has Parkinsons and are wondering the  same, info is as follows:

Protocal No    PD002
                        WIRB Protocol20160947
                         2016W0051

Sponsor          InSightec

Investigator    Vibbor Krishna
                         480 Medical Center Dr
                          Columbus, OH 43210

I was referred by my neurologist  -assume that is the route but it is so new that most doctors are not aware of it's existance.   You may have to track down Dr. Krishna's phone  # through OSU (Ohio State University) Hospitals Department of Neuromodulation